“That voice needs to be turned not only to the government officials in our state but also to other people so that they can be able to draw awareness to what lupus is as well and let people know this isn’t a death sentence, and that lupus isn’t going to define you.”Ĭhay said keeping herself busy helped her through the affects lupus has on her. “It was only until this year when I started to get involved with Lupus Foundation of America that I began to see that I have an important voice,” Chay said. She added that there’s not a lot known about lupus, so more research needs to be done. Chay said that 90% of people who have lupus are women, and it is more common in women of color. While you can manage lupus with treatment, there is no cure. Symptoms include pain and inflammation in the joints, fatigue, hair loss and kidney issues. Lupus is described as a chronic autoimmune disease that can damage any part of the body, and there is a wide range of how it affects people. “So, I wanted to create a book that made women feel heard.” It was a lonely, scary time and I knew no one who had lupus and when I got the diagnosis, I was just basically given my medication and shoved out the door,” Chay said. “I started a book because it’s what I needed when I was diagnosed. And first, right, a quick Google search to be like ‘oh my gosh this is a terrible disease to have,’ and then the reality began to kick in,” Chay said.Ĭhay said, knowing she was immunocompromised during this time added to what she was feeling.
“When I got that diagnosis, it was really kind of a slap in the face of the reality. Although the declaration expired, a community member dealing with lupus said safety precautions don’t stop.Īmanda Chay, from Cary, said she was diagnosed with lupus at the beginning of the COVID-19 pandemic. This all comes as the Federal COVID-19 Public Health Emergency Declaration ended earlier this month.
A lupus advocate explains that immunocompromised people can still get sick easily.Although the Federal COVID-19 Public Health Emergency Declaration expired, safety measures are still important for some.The CDC updated its COVID-19 guidance for those who are immuncompromised.
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